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Children with disabilities & their parents have a more difficult hand dealt to them that they must overcome daily. I have a few examples of these courageous people: one is my niece Shylah who was mentioned in part 1. She was born with cerebral palsey, tracheal esophageal fistula atresia, & undiagnosed seizures. She coded (stopped breathing) for 45 minutes to 1 hour, she also had to have a jejunum gastric tube inserted into her abdomen. since then, she has fought valiantly to progress through her many challenges. Another example is that of a friend whose daughter was has cystic fibrosis. This girl has to have multiple breathing treatment daily. When she eats she has to have enzymes due to the inability to digest food. She also has a club foot & a low tolerance to illnesses. Even so, for a 3 year old, she braves all of the procedures & multiple hospital visits she must endure during winter. In short, she is one of the bravest girl I know.When it comes to parents of disabled kids one of the strongest people I know is Danielle (Shylah's mother). She has struggled with her daughter's seizures,as,well,as, being a single mother.Another strong parent is the friend whose daughter has CF. She & her husband have to constantly be on guard to prevent any illnesses from entering their home. This means that at times their daughter can't have friends or family over if any friend or family member has any illness of any kind. In short, when it comes to illnesses they have to isolate her. In closing, these families with disabilities show the most courage, bravery, & strength of anyone I know. Because no parent can truly know exactly how strong, courageous, or brave they'll be until they are put in a situation where they have a child with disabilities or birth defects. Finally, Shylah's postictal & gelastic seizures are now under control. And the girl with CF is the sweetest girl considering what she goes through. Also, new research has extended the life of CF patients.
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